Useful links to resources for healthcare professionals
Scottish Palliative Care Guidelines
Useful Supporting Resources for Healthcare Professionals
Accessing Financial Assistance
Macmillan Money Matters (cancer only) Getting the support you need (macmillan.org.uk)
SR1 or old DS1500 (12 month prognosis, not including Scotland) The ‘Special Rules’: how the benefit system supports people nearing the end of life - GOV.UK (www.gov.uk)
BASRiS or SR1 (Scotland only) Social Security Scotland - When to complete a BASRiS, SR1 or a DS1500 from
Citizens Advice (benefits check service) Benefits - Citizens Advice
Acute oncology
SINS risk of instability in metastatic cord compression Clinical version: Spinal Instability Neoplastic Score (SINS) | QxMD
MIRELS (prophylactic fixation criteria in bone metastases Mirels Score - Criteria for Prophylactic Fixation (Calculator) (mdapp.co)
MASCC neutropenic sepsis MASCC Febrile Neutropenia Risk | QxMD
Acute oncology UK guidelines https://www.ukacuteoncology.co.uk/information-hub/ao-guidelines
Autism
Palliative and end of life care for autistic people (autism.org.uk)
Health & Behaviour | Autism Spectrum Disorders (ASDs) (scot.nhs.uk)
Child Bereavement Support
Winston's Wish - giving hope to grieving children (winstonswish.org)
CJD Symptom Management
Symptomatic treatment | National Prion Clinic - UCL – University College London
Conversion Calculators
Pregabalin : gabapentin conversion calculator Switching between gabapentin and pregabalin for neuropathic pain – SPS - Specialist Pharmacy Service – The first stop for professional medicines advice
Opioid conversion calculator SPOT - Opioid Calculator on the App Store (apple.com)
Benzodiazepine conversion calculators
Benzodiazepine Equivalents Conversion Calculator - ClinCalc.com
Benzodiazepine Conversion Calculator (mdcalc.com)
Steroid conversion Steroid Conversion Calculator (mdcalc.com)
Parkinson’s disease and poor swallow
Professional information: https://www.sps.nhs.uk/articles/parkinsons-disease-medicines-in-swallowing-difficulties/
Rotigotine conversion calculator "Nil by mouth" medication dose calculators and guidelines | Parkinson's UK (parkinsons.org.uk)
Rotigotine conversion calculator Home | PDMedCalc
Dementia
End of life digital FINAL (wordpress.com)
Drugs and Driving
Scotland healthcare professional- Drug+driving+-+guidance+for+healthcare+professionals.pdf (www.gov.scot)
Scotland patient information - Drug+driving+rules+explained+-+leaflet.pdf (www.gov.scot)
Elderly Care and Frailty
BGS guidelines on end of life care in frailty: https://www.bgs.org.uk/resources/resource-series/end-of-life-care-in-frailty
Clinical Frailty Score: rockwood_cfs.pdf (bgs.org.uk)
Faith communities
NHSGGC Faith and Belief Communities Manual, handy for key information regarding spiritual care aspects of patient care including views on death and dying and post-death arrangements: https://www.nhsggc.org.uk/media/255952/nhsggc_equalities__faith_and_belief_communities_manual.pdf
Muslim Bereavement Support Service About Us - Muslim Bereavement Support Service (mbss.org.uk)
Culturally sensitive prescribing of common symptom management drugs https://spcare.bmj.com/content/13/e1/e63
Future Care Planning Patient Information (Scotland)
Planning ahead Future care planning | NHS inform
Legal and practical issues (Will, Power of Attorney, Guardianship etc) Legal and practical issues | NHS inform
Hearing Impairment
Learning Disability
Resources « PCPLD Network – Palliative Care of People with Learning Disabilities Network
Low vision
Sight Scotland. Educating & Supporting People With Vision Loss
Mouth Care
Professional information Home - Mouth Care Matters (hee.nhs.uk)
Royal College of Nursing guideline Mouth Care Matters in End-of-Life Care | Publications | Royal College of Nursing (rcn.org.uk)
Nutrition
Food first patient information leaflet - Food First/Food Enrichment | BAPEN
Healthcare professional nutrition CPD - https://www.hospiceuk.org/innovation-hub/clinical-care-support/nutrition-palliative-care
Pancreatic Enzyme Replacement patient information leaflet - PCUK_PERT_Factsheet_RGB_Dec_2023.pdf (pancreaticcancer.org.uk)
Paediatric Palliative Care
APPM Formulary – APPM Master Formulary
Paediatric patient information leaflets - Leaflets – Medicines For Children
Children’s Hospice Association Across Scotland - Children's Hospices Across Scotland | CHAS
National Managed Clinical Network: PELiCaN Paediatric End of Life Care Network PELiCaN – Paediatric End of Life Care Network (nhs.scot)
Together for Short Lives Together for Short Lives: Children's Charities - Children Hospices
ICPCN Improving Palliative Care for the World’s Children icpcn.org
Royal Hospital for Children Glasgow Paediatric Supportive and Palliative Care Clinical Guidelines pages Paediatric Supportive & Palliative Care (scot.nhs.uk)
Association of Paediatric Palliative Medicine (main website page not just formulary link) Home | Association for Paediatric Palliative Medicine (APPM)
European Association for Palliative Care Children and Young People's Reference Group, EAPC Palliative Care for Children & Young People - EAPC (eapcnet.eu)
Pain and Symptom assessment scales
Identifying a patient in need of a palliative approach
SPICT – “SPICT™ is used to help identify people with deteriorating health due to a new serious illness, one or multiple health conditions, or frailty in older age so they benefit from holistic assessment, future care planning (advance/anticipatory care planning) and a palliative approach to care.” The SPICT™ – SPICT
GSF Proactive Identification Guidance to support earlier identification of patients nearing end of life: https://goldstandardsframework.org.uk/cd-content/uploads/files/PIG/Proactive%20Identification%20Guidance%20v7%20(2022).pdf
General pain scales
Outcome_Measures_January_2019.pdf (britishpainsociety.org)
LANSS Scale for Neuropathic Pain Questionnaire Calculator (thecalculator.co)
Pain scales in cognitive impairment
Doloplus - https://www.doloplus.fr/en/the-doloplus-scale/
Abbey - attachment-3-abbey-pain-scale.doc (live.com)
Palliative Care Formulary “PCF” + Compatibility Checker Access
The Knowledge Network Scotland - The Knowledge Network: Scotland's source of knowledge for health and care – Expand “Medicines Information Resources” bottom left, select “Palliative Care Formulary”, Requires an NHS Scotland networked computer or Scottish OpenAthens account
Palliative Care Guidelines Plus (pallcare.info) – open access compatibility checker
Patient Information leaflets
All patient information leaflets not relating to medications: Palliative care | NHS inform
Hiccups Hiccups - NHS (www.nhs.uk)
Prescribing within dietary requirements
Culturally sensitive prescribing of common symptom management drugs https://spcare.bmj.com/content/13/e1/e63
Scoring Systems
Assessing risk of alcohol misuse
CAGE CAGE Alcohol Abuse Screening Tool - Pedagogy Education
Assessing risk of substance misuse
CAGE-AID CAGE-AID Substance Abuse Screening Tool - Pedagogy Education
SOAPP-SF I-SOAP (slu.edu)
SOAPP-R SOAPP-R tool - UpToDate
Substance misuse - withdrawal
Alcohol withdrawal CIWA-Ar for Alcohol Withdrawal (mdcalc.com)
Opioid withdrawal COWS Score for Opiate Withdrawal (mdcalc.com)
Benzodiazepine withdrawal Benzodiazepine Withdrawal Scale (CIWA-B) (unc.edu)
Tissue Donation
Home | Organ Donation Scotland
Tools
Severity of liver failure Child-Pugh Score for Cirrhosis Mortality (mdcalc.com)
Corrected QT Corrected QT Interval (QTc) (mdcalc.com)
Corrected calcium Calcium Correction for Hypoalbuminemia (mdcalc.com)